TECENDO AMOROSIDADE EM HISTÓRIAS DE VIDA E DE MORTE: VIVÊNCIAS DE DOULAS DA MORTE
VIVÊNCIAS DE DOULAS DA MORTE
WEAVING LOVINGNESS IN LIFE AND DEATH STORIES: EXPERIENCES OF DEATH DOULAS
EXPERIENCES OF DEATH DOULAS
DOI:
https://doi.org/10.18066/revistaunivap.v29i64.4479
Abstract
This study aims at investigating the experiences of death Doulas in Brazil. It is a qualitative piece of research and was carried with 20 death Doulas who were trained and work in Brazil, aged between 27 and 68. The interviews were collected between June and August 2022 and were submitted to the Content Analysis technique. The testimonies were analyzed based on the relevant literature. From the speeches, it was possible to observe that death doulas are collaborators who use compassionate communication strategies in all phases of death with people who experience the end of life and their families. These Doulas act in the whole health care network and are also facilitators educating people for death. They also present some difficulties, such as the taboo of death and the lack of professional regulation, which intensify its occupational stigma. It is crucial to widen the perspective towards death Doulas, so that the visibility and importance of this profession may change the paradigm of death as a forbidden theme and make room for a look at dying well
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References
Aith, F. M. A., Germani, A. C. C., Balbinot, R., & Dallari, S. G. (2018). Regulação do exercício de profissões de saúde: fragmentação e complexidade do modelo regulatório brasileiro e desafios para seu aperfeiçoamento. Revista de Direito Sanitário, 19(2), 198-218. https://doi.org/10.11606/issn.2316-9044.v19i2p198-218
Arendt, H. (2004). A condição humana (R. Raposo trad.). Forense Universitária.
Bardin, L. (2011). Análise do conteúdo. Edições 70.
Calice, G. B., Canosa, H. G., & Chiba, T. (2021). Processo Ativo de Morte: Definição e Manejo de Sintomas. Manual de Cuidados Paliativos. Atheneu.
Cardoso, M. A. F., Hanashiro, D. M. M., & Barros, D. L. P. (2016). Um caminho metodológico pela análise semiótica de discurso para pesquisas em identidade organizacional. Cadernos EBAPE, 14 (2), 351-376. https://doi.org/10.1590/1679-395118952
Cardoso, E. A. O., & Santos, M. A. (2017). Grupo de Educação para a morte: uma estratégia complementar à formação acadêmica do profissional de saúde. Psicologia: Ciência e Profissão, 37(2), 500-514. https://doi.org/10.1590/1982-3703002792015
Corporon, K. (2011). Comfort and caring at the end of life: Baylor’s doula program. Proc Baylor University Medical Center, 24 (4), 318–319. https://doi:org/10.1080/08998280.2011.11928748
Cheng, H. W. B., Shek, P. S. K., Man, C. W., Chan, O. M., Chan, C. H., Lai, K. M., Fung, K.S., Lui, W. K., Lam, C., Ng, Y.K., Wong, W. T., & Wong, C. (2019). Dealing with death taboo: discussion of do-not-resuscitate directives with Chinese patients with noncancer life-limiting illnesses. The American jornal of hospice & palliative care, 36 (9), 760-766. https://doi.org/10.1177/1049909119828116
Dossey, B. M., & Dossey, L. (2002). In: J. Watson. Enfermagem pós-moderna e futura: um novo paradigma da enfermagem (J. M. M Enes Trad.). Lusociência.
Elliot, H. (2014). Death doulas complement nursing care at the end of life. Nursing Times, 110(7), 34-35. PMID: 25241431.
Etkind, S. N., Bone, A. E., Gomes, B., Lovell, N., Evans, C. J., Higginson, I. J., & Murtagh, F. E. M. (2017). How many people will need palliative care in 2040? Past trends, future projections and implications for services. BMC medicine, 15(1), 1-10. https://doi.org/10.1186/s12916-017-0860-2.
Eagleton, T. (1993). A ideologia da estética (M. S. R. Costa Trad.). Zahar.
Egbert, N., Child, J. T., Lin, M. C., Savery, C., & Bosley, T. (2017). How older adults and their families perceive family talk about aging-related EOL issues: A dialectical analysis. Behavioral Sciences, 7(2), 21. https://doi.org/10.3390/bs7020021
Fukuzawa, R. & Kondo, K. (2017). A holistic view from birth to the end of life: end-of-life doulas and new developments in end-of-lifecare in the West. International journal of palliative nursing, 23 (1), 612-619. https://doi.org/10.12968/ijpn.2017.23.12.612.
Faria, S. S., & Figueiredo, J. S. (2017). Aspectos emocionais do luto e da morte em profissionais da equipe de saúde no contexto hospitalar. Psicologia hospitalar, 15 (1), 44-66. http://pepsic.bvsalud.org/pdf/ph/v15n1/15n1a05.pdf
Francis, A. A. (2022). Gender and legitimacy in personal service occupations: the case of End-of-Life Doulas and Death Midwives. Journal of Contemporary Ethnography, 51(3), 376-406. https://doi.org/10.1177/08912416211048927
Gaspard, G., Gadsby, C., & Mallmes, J. (2021). Indigenous end-of-life doula course: bringing the culture home. International Journal Indigenous Health, 16 (2), 151-165. https://doi.org/10.32799/ijih.v16i2.33230
Henkel, R. (2017). Alternative endings: insight into alternative end-of-life care options. [Master of Social Work, University of St. Thomas and St. Catherine University] Sophia Repository. https://sophia.stkate.edu/cgi/viewcontent.cgi?article=1750&context=msw_papers
Kovács, M. J. (2021). Educação para a morte: quebrando paradigmas. Sinopsys.
Krawczyk, M., & Rush, M. (2020). Describing the end-of-life doula role and practices of care: perspectives from four countries. Palliative Care and Social Practice, 14, 2632352420973226. https://doi.org/ 10.1177/2632352420973226.
Kwok, T., Twinn, S., & Yan, E. (2007). The attitudes of Chinese family caregivers of older people with dementia towards life sustaining treatments. Journal advanced nursing, 58 (3), p. 256-262. https://doi.org/10.1111/j.1365-2648.2007.04230.x.
Lei nº 3.946 de 2021 do Senado Federal (2021). Ofício nº 128/22. Dispõe sobre o exercício da profissão de doula. Brasília, DF. https://www.camara.leg.br/proposicoesWeb/prop_mostrarintegra?codteor=2153980
Masters, J. L., Toller, P. M., Kelley, N. J., & Holley, L. M. (2020). Begin with the End in Mind: A three-part workshop series to facilitate end-of-life discussions with members of the community. Gerontology & Geriatrics Education, 41(4), 430-446. https://doi.org/10.1080/02701960.2018.1446005
Mori, M., Yoshida, S., Shiozaki, M., Baba, M., Morita, T., Aoyama, M., Kizawa, Y., Tsuneto, S., Shima, Y., & Miyashita, M. (2017). Talking about death with terminally-ill cancer patients: what contributes to the regret of bereaved family members? Journal of pain and symptom management, 54 (6), 853-860. https://doi.org/10.1016/j.jpainsymman.2017.02.021.
Minayo, M. C. S., Deslandes, S. F., & Gomes, R. (2007). Pesquisa social: teoria, método e criatividade. Vozes.
Ministério da Saúde. (2021). Ofício curricular de n°2 de 24 de fevereiro de 2021. Ministério da Saúde. http://conselho.saude.gov.br/images/Oficio_Circular_2_24fev2021.pdf
Ministério do Trabalho. (2022). Portal Emprega Brasil. Classificação Brasileira de Ocupações. MT. http://www.mtecbo.gov.br/cbosite/pages/home.jsf
Monteiro, D. F. B., Pereira, V. F., Oliveira, L. L., Lima, O. P., & de Pádua Carrieri, A. (2017). O trabalho sujo com a morte: o estigma e a identidade no ofício do Coveiro. Revista Interdisciplinar de Gestão Social, 6 (1),77-98. https://periodicos.ufba.br/index.php/rigs/article/view/21424
Mallon, A. (2021). Compassionate community structure and function: a standardized micro-model for end-of-life doulas and community members supporting those who wish to die at home. Palliative Care and Social Practice, 15,1-14. https://doi.org/10.1177/26323524211052569.
Narain, J. P. & Thankappan, K.R. (2018). Noncommunicable diseases surveillance in India: moving toward a more comprehensive approach. International Journal Noncommunicable Diseases, 3(4), 111-114. https://doi.org/10.4103/0970-0218.94709
Ozdemir, S., Malhotra, C., Teo, I., Yang, G. M., Kanesvaran, R., Yee, A. C., & Finkelstein, E. A. (2019). Palliative care awareness among advanced cancer patients and their family caregivers in Singapore. Annals, Academy of Medicine, Singapore, 48(8), 241-246. https://pubmed.ncbi.nlm.nih.gov/31628743
Page, A. D., & Husain, J. H. (2021). End-of-life Doulas: documenting their backgrounds and services. OMEGA-Journal of Death and Dying, 00302228211047097. https://doi.org/10.1177/00302228211047097
Pellegrino, E. (1985). The caring ethics. In: A. H. Bishop & J. R. Scudder Jr (Eds). Caring, curing, coping. Alabama.
Resolução nº 466, de dezembro de 2012 (2012). Ministério da Saúde. https://bvsms.saude.gov.br/bvs/saudelegis/cns/2013/res0466_12_12_2012.html
Roselló, F.T. (2009). Antropologia do cuidar. Vozes.
Rawlings, D., Tieman, J., Miller‐Lewis, L., & Swetenham, K. (2018). What role do Death Doulas play in end-of-life care? A systematic review. Health & social care community, 27(3), 82-94. https://doi.org/10.1111/hsc.12660.
Rawlings, D., Litster, C., Miller‐Lewis, L., Tieman, J., & Swetenham, K. (2019). The voices of death doulas about their role in end-of-life care. Health & social care community, 28 (1), 12-21. https://doi.org/10.1111/hsc.12833.
Rawlings, D., Litster, C., Miller‐Lewis, L., Tieman, J., & Swetenham, K. (2020). End-of-life doulas: A qualitative analysis of interviews with Australian and international death doulas on their role. Health & social care community, 29 (2), 574-587. https://doi.org/10.1111/hsc.13120.
Rawlings, D., Davies, G., & Tieman, J. (2021). Compassionate communities – What does this mean for roles such as a death doula in end-of-life care? Public Health, 194,167-169. https://doi.org/10.1016/j.puhe.2021.02.038.
Rodrigues, B. M. R. D., Santana, J. S. D., Pacheco, S. T. D. A., Ciuffo, L. L., Gomes, A. P. D. R., Rosa, J. D. S., & Cardoso, J. M. R. M. (2011). A ética no cuidar em enfermagem: contribuições da fenomenologia de Alfred Schutz. Revista de enfermagem da UERJ, 19 (2), 236-241. https://pesquisa.bvsalud.org/portal/resource/fr/bde-20446
Santos, I., Caldas, C. P., Erdmann, A. L., Gauthier, J., & de Figueiredo, N. M. A. (2012). Cuidar da integralidade do ser: perspectiva estética/sociopoética de avanço de domínio da Enfermagem. Revista de enfermagem da UERJ, 20(1), 9-14. https://www.e-publicacoes.uerj.br/index.php/enfermagemuerj/article/view/3967/2750
Sebold, L. F., Kempfer, S. S., Girondi, J. B. R., & Prado, M. L. (2016). Percepção de docentes de enfermagem sobre o cuidado: uma construção heideggeriana. Revista da Escola de Enfermagem da USP, 50, 39-46. https://doi.org/10.1590/S0080-623420160000300006
Silva, S. M. A. (2016). Os cuidados ao fim da vida no contexto dos cuidados paliativos. Revista Brasileira de Cancerologia, 62(3), 253-257.https://doi.org/10.32635/2176-9745.RBC.2016v62n3.338
Soneghet, L. F. (2020). Fazendo o melhor da vida na morte: arranjos de cuidados, qualidade de vida e cuidados paliativos. Revista M: Estudos sobre a Morte, os Mortos e o Morrer, 5 (10), 357-282. https://doi.org/10.9789/2525-3050.2020.v5i10.357-382
Tumber, A. (2020). Death become sthem: death doulas, gender, and advance care planning. [Master thesis, Memorial University of Newfoundland, Newfoundland and Labrador’s University]. https://research.library.mun.ca/14694/
Watson, J. (2002). Enfermagem pós-moderna e futura: um novo paradigma da enfermagem (J. M. M Enes Trad.). Lusociência.
Yoong, S. Q., Goh, H. S., & Zhang, H. Death doulas as supportive companions in end-of-life care: A scoping review. Palliative Medicine, 36(5), 795-809. https://doi.org/10.1177/02692163221080659
Yamaguchi, T., Maeda, I., Hatano, Y., Mori, M., Shima, Y., Tsuneto, S., Kizawa, Y., M.D, Morita, T., Yamaguchi, T., Aoyama, M., & Miyashita, M. (2017). Effects of end-of-life discussions on the mental health of bereaved family members and quality of patient death and care. Journal of Pain and Symptom Management, 54(1), 17-26. https://doi.org/10.1016/j.jpainsymman.2017.03.008.
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2023-12-08
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Agra, G., de Lima Monteiro, M. H., Barbiere Santana, T., Marques Nunes, E., Mendonça Saraiva Nagashima, A., & de Oliveira Gaudêncio, E. (2023). WEAVING LOVINGNESS IN LIFE AND DEATH STORIES: EXPERIENCES OF DEATH DOULAS. Revista Univap, 29(64). https://doi.org/10.18066/revistaunivap.v29i64.4479
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DOI:
https://doi.org/10.18066/revistaunivap.v29i64.4479Abstract
This study aims at investigating the experiences of death Doulas in Brazil. It is a qualitative piece of research and was carried with 20 death Doulas who were trained and work in Brazil, aged between 27 and 68. The interviews were collected between June and August 2022 and were submitted to the Content Analysis technique. The testimonies were analyzed based on the relevant literature. From the speeches, it was possible to observe that death doulas are collaborators who use compassionate communication strategies in all phases of death with people who experience the end of life and their families. These Doulas act in the whole health care network and are also facilitators educating people for death. They also present some difficulties, such as the taboo of death and the lack of professional regulation, which intensify its occupational stigma. It is crucial to widen the perspective towards death Doulas, so that the visibility and importance of this profession may change the paradigm of death as a forbidden theme and make room for a look at dying well
Downloads
References
Aith, F. M. A., Germani, A. C. C., Balbinot, R., & Dallari, S. G. (2018). Regulação do exercício de profissões de saúde: fragmentação e complexidade do modelo regulatório brasileiro e desafios para seu aperfeiçoamento. Revista de Direito Sanitário, 19(2), 198-218. https://doi.org/10.11606/issn.2316-9044.v19i2p198-218
Arendt, H. (2004). A condição humana (R. Raposo trad.). Forense Universitária.
Bardin, L. (2011). Análise do conteúdo. Edições 70.
Calice, G. B., Canosa, H. G., & Chiba, T. (2021). Processo Ativo de Morte: Definição e Manejo de Sintomas. Manual de Cuidados Paliativos. Atheneu.
Cardoso, M. A. F., Hanashiro, D. M. M., & Barros, D. L. P. (2016). Um caminho metodológico pela análise semiótica de discurso para pesquisas em identidade organizacional. Cadernos EBAPE, 14 (2), 351-376. https://doi.org/10.1590/1679-395118952
Cardoso, E. A. O., & Santos, M. A. (2017). Grupo de Educação para a morte: uma estratégia complementar à formação acadêmica do profissional de saúde. Psicologia: Ciência e Profissão, 37(2), 500-514. https://doi.org/10.1590/1982-3703002792015
Corporon, K. (2011). Comfort and caring at the end of life: Baylor’s doula program. Proc Baylor University Medical Center, 24 (4), 318–319. https://doi:org/10.1080/08998280.2011.11928748
Cheng, H. W. B., Shek, P. S. K., Man, C. W., Chan, O. M., Chan, C. H., Lai, K. M., Fung, K.S., Lui, W. K., Lam, C., Ng, Y.K., Wong, W. T., & Wong, C. (2019). Dealing with death taboo: discussion of do-not-resuscitate directives with Chinese patients with noncancer life-limiting illnesses. The American jornal of hospice & palliative care, 36 (9), 760-766. https://doi.org/10.1177/1049909119828116
Dossey, B. M., & Dossey, L. (2002). In: J. Watson. Enfermagem pós-moderna e futura: um novo paradigma da enfermagem (J. M. M Enes Trad.). Lusociência.
Elliot, H. (2014). Death doulas complement nursing care at the end of life. Nursing Times, 110(7), 34-35. PMID: 25241431.
Etkind, S. N., Bone, A. E., Gomes, B., Lovell, N., Evans, C. J., Higginson, I. J., & Murtagh, F. E. M. (2017). How many people will need palliative care in 2040? Past trends, future projections and implications for services. BMC medicine, 15(1), 1-10. https://doi.org/10.1186/s12916-017-0860-2.
Eagleton, T. (1993). A ideologia da estética (M. S. R. Costa Trad.). Zahar.
Egbert, N., Child, J. T., Lin, M. C., Savery, C., & Bosley, T. (2017). How older adults and their families perceive family talk about aging-related EOL issues: A dialectical analysis. Behavioral Sciences, 7(2), 21. https://doi.org/10.3390/bs7020021
Fukuzawa, R. & Kondo, K. (2017). A holistic view from birth to the end of life: end-of-life doulas and new developments in end-of-lifecare in the West. International journal of palliative nursing, 23 (1), 612-619. https://doi.org/10.12968/ijpn.2017.23.12.612.
Faria, S. S., & Figueiredo, J. S. (2017). Aspectos emocionais do luto e da morte em profissionais da equipe de saúde no contexto hospitalar. Psicologia hospitalar, 15 (1), 44-66. http://pepsic.bvsalud.org/pdf/ph/v15n1/15n1a05.pdf
Francis, A. A. (2022). Gender and legitimacy in personal service occupations: the case of End-of-Life Doulas and Death Midwives. Journal of Contemporary Ethnography, 51(3), 376-406. https://doi.org/10.1177/08912416211048927
Gaspard, G., Gadsby, C., & Mallmes, J. (2021). Indigenous end-of-life doula course: bringing the culture home. International Journal Indigenous Health, 16 (2), 151-165. https://doi.org/10.32799/ijih.v16i2.33230
Henkel, R. (2017). Alternative endings: insight into alternative end-of-life care options. [Master of Social Work, University of St. Thomas and St. Catherine University] Sophia Repository. https://sophia.stkate.edu/cgi/viewcontent.cgi?article=1750&context=msw_papers
Kovács, M. J. (2021). Educação para a morte: quebrando paradigmas. Sinopsys.
Krawczyk, M., & Rush, M. (2020). Describing the end-of-life doula role and practices of care: perspectives from four countries. Palliative Care and Social Practice, 14, 2632352420973226. https://doi.org/ 10.1177/2632352420973226.
Kwok, T., Twinn, S., & Yan, E. (2007). The attitudes of Chinese family caregivers of older people with dementia towards life sustaining treatments. Journal advanced nursing, 58 (3), p. 256-262. https://doi.org/10.1111/j.1365-2648.2007.04230.x.
Lei nº 3.946 de 2021 do Senado Federal (2021). Ofício nº 128/22. Dispõe sobre o exercício da profissão de doula. Brasília, DF. https://www.camara.leg.br/proposicoesWeb/prop_mostrarintegra?codteor=2153980
Masters, J. L., Toller, P. M., Kelley, N. J., & Holley, L. M. (2020). Begin with the End in Mind: A three-part workshop series to facilitate end-of-life discussions with members of the community. Gerontology & Geriatrics Education, 41(4), 430-446. https://doi.org/10.1080/02701960.2018.1446005
Mori, M., Yoshida, S., Shiozaki, M., Baba, M., Morita, T., Aoyama, M., Kizawa, Y., Tsuneto, S., Shima, Y., & Miyashita, M. (2017). Talking about death with terminally-ill cancer patients: what contributes to the regret of bereaved family members? Journal of pain and symptom management, 54 (6), 853-860. https://doi.org/10.1016/j.jpainsymman.2017.02.021.
Minayo, M. C. S., Deslandes, S. F., & Gomes, R. (2007). Pesquisa social: teoria, método e criatividade. Vozes.
Ministério da Saúde. (2021). Ofício curricular de n°2 de 24 de fevereiro de 2021. Ministério da Saúde. http://conselho.saude.gov.br/images/Oficio_Circular_2_24fev2021.pdf
Ministério do Trabalho. (2022). Portal Emprega Brasil. Classificação Brasileira de Ocupações. MT. http://www.mtecbo.gov.br/cbosite/pages/home.jsf
Monteiro, D. F. B., Pereira, V. F., Oliveira, L. L., Lima, O. P., & de Pádua Carrieri, A. (2017). O trabalho sujo com a morte: o estigma e a identidade no ofício do Coveiro. Revista Interdisciplinar de Gestão Social, 6 (1),77-98. https://periodicos.ufba.br/index.php/rigs/article/view/21424
Mallon, A. (2021). Compassionate community structure and function: a standardized micro-model for end-of-life doulas and community members supporting those who wish to die at home. Palliative Care and Social Practice, 15,1-14. https://doi.org/10.1177/26323524211052569.
Narain, J. P. & Thankappan, K.R. (2018). Noncommunicable diseases surveillance in India: moving toward a more comprehensive approach. International Journal Noncommunicable Diseases, 3(4), 111-114. https://doi.org/10.4103/0970-0218.94709
Ozdemir, S., Malhotra, C., Teo, I., Yang, G. M., Kanesvaran, R., Yee, A. C., & Finkelstein, E. A. (2019). Palliative care awareness among advanced cancer patients and their family caregivers in Singapore. Annals, Academy of Medicine, Singapore, 48(8), 241-246. https://pubmed.ncbi.nlm.nih.gov/31628743
Page, A. D., & Husain, J. H. (2021). End-of-life Doulas: documenting their backgrounds and services. OMEGA-Journal of Death and Dying, 00302228211047097. https://doi.org/10.1177/00302228211047097
Pellegrino, E. (1985). The caring ethics. In: A. H. Bishop & J. R. Scudder Jr (Eds). Caring, curing, coping. Alabama.
Resolução nº 466, de dezembro de 2012 (2012). Ministério da Saúde. https://bvsms.saude.gov.br/bvs/saudelegis/cns/2013/res0466_12_12_2012.html
Roselló, F.T. (2009). Antropologia do cuidar. Vozes.
Rawlings, D., Tieman, J., Miller‐Lewis, L., & Swetenham, K. (2018). What role do Death Doulas play in end-of-life care? A systematic review. Health & social care community, 27(3), 82-94. https://doi.org/10.1111/hsc.12660.
Rawlings, D., Litster, C., Miller‐Lewis, L., Tieman, J., & Swetenham, K. (2019). The voices of death doulas about their role in end-of-life care. Health & social care community, 28 (1), 12-21. https://doi.org/10.1111/hsc.12833.
Rawlings, D., Litster, C., Miller‐Lewis, L., Tieman, J., & Swetenham, K. (2020). End-of-life doulas: A qualitative analysis of interviews with Australian and international death doulas on their role. Health & social care community, 29 (2), 574-587. https://doi.org/10.1111/hsc.13120.
Rawlings, D., Davies, G., & Tieman, J. (2021). Compassionate communities – What does this mean for roles such as a death doula in end-of-life care? Public Health, 194,167-169. https://doi.org/10.1016/j.puhe.2021.02.038.
Rodrigues, B. M. R. D., Santana, J. S. D., Pacheco, S. T. D. A., Ciuffo, L. L., Gomes, A. P. D. R., Rosa, J. D. S., & Cardoso, J. M. R. M. (2011). A ética no cuidar em enfermagem: contribuições da fenomenologia de Alfred Schutz. Revista de enfermagem da UERJ, 19 (2), 236-241. https://pesquisa.bvsalud.org/portal/resource/fr/bde-20446
Santos, I., Caldas, C. P., Erdmann, A. L., Gauthier, J., & de Figueiredo, N. M. A. (2012). Cuidar da integralidade do ser: perspectiva estética/sociopoética de avanço de domínio da Enfermagem. Revista de enfermagem da UERJ, 20(1), 9-14. https://www.e-publicacoes.uerj.br/index.php/enfermagemuerj/article/view/3967/2750
Sebold, L. F., Kempfer, S. S., Girondi, J. B. R., & Prado, M. L. (2016). Percepção de docentes de enfermagem sobre o cuidado: uma construção heideggeriana. Revista da Escola de Enfermagem da USP, 50, 39-46. https://doi.org/10.1590/S0080-623420160000300006
Silva, S. M. A. (2016). Os cuidados ao fim da vida no contexto dos cuidados paliativos. Revista Brasileira de Cancerologia, 62(3), 253-257.https://doi.org/10.32635/2176-9745.RBC.2016v62n3.338
Soneghet, L. F. (2020). Fazendo o melhor da vida na morte: arranjos de cuidados, qualidade de vida e cuidados paliativos. Revista M: Estudos sobre a Morte, os Mortos e o Morrer, 5 (10), 357-282. https://doi.org/10.9789/2525-3050.2020.v5i10.357-382
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